DELETE THIS POST it is Obsolete Brilee Needs a Heart transplant
My Niece
Wednesday, January 26, 2011 by Disturbedcomputer | Discussion: WinCustomize Talk
Brilee Needs a Heart transplant
I am writing to you all in hopes you will send Brilee a Get Well soon card.
Brilee is my Great Niece; she was born November 29th 2010, at Children's Hospital in St. Louis, Missouri
She has;
HLHS which is Hypoplastic left heart syndrome
Critical AS; bicuspid aortic valve, dilated LV with poor Function, moderate EFE of the LV, arch hypoplasia.
Intraoperative SVT, which progressed to ventricular tachycardia and ventricular fibrillation, on Digoxin.
Pre surgery large thrombi x2 noted within Left ventricle. Treated with lovenox therapy.
Tricuspid Valve regurgitation (post-operative).
at 10-days-old
On December 9th Brilee had surgery; s/p Norwood reconstruction including an atrial septectomy, division of the patent ductus arteriosus, and placement of a right modified Blalock-Taussig shunt using a 4.0mm Gore-Tex graft.
On January 18th Brilee was life lifted to Children’s Hospital in St. Louis Missouri
She has passed the entire test to be placed on the Transplant List Monday 23rd January. She is an a1 on the list.
Today they took her off the Respirators at 1pm for the 4th time this time Brilee crashed she is now stable and they have her on life support tomorrow Wednesday 26th I hear they will run test to see if she has suffered Brain Damage, If she did they will remove her the Transplant List…
PLEASE send Brilee get well cards… she will be 8-weeks-old January 29th 2011
St. Louis Children's Hospital
Brilee Marriott Rm 7
One Children's Place St. Louis, MO 63110
I know this will greatly lift my niece Jennifer and her Fiancé Sean spirits up..
Thank you.
Pictures
http://www.facebook.com/album.php?id=100001591729901&aid=20978
or
myspace
http://www.myspace.com/disturbedcomputer/photos/albums/brilee/1604516#mssrc=SitesPhotos_SP_AlbumCover_ViewAlbum
Videos
http://www.facebook.com/video/video.php?v=135961053133618
http://www.facebook.com/video/video.php?v=133055596757497
http://www.facebook.com/video/video.php?v=132953656767691
Edited
DrJBHL made a post here
A Get Well Thread For Brilee
Thank you Dr.JBHL
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Reply #82 Saturday, March 19, 2011 3:53 PM
I am in latest FF DC and see the video just fine when I click on the link. That is a beautiful thing, I have 4 dream catchers in my home.
Reply #83 Saturday, March 19, 2011 4:53 PM
my niece Brilee is it and her Mom
something is going very WRONG on my side still don't see the Video and tried 2 system restores and they both field must have a bug
Reply #84 Saturday, March 19, 2011 10:16 PM
Are you talking about post 78? Because if you are I don't see the vid either and I'm using palemoon.
Reply #86 Saturday, March 19, 2011 11:24 PM
yes 78 and 79 ..
well at lest I know it's not just me so it can't be a bug on my pc
Reply #88 Sunday, March 20, 2011 2:32 PM
there should be a video in both but the same video so then i just put a link in 79
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Reply #81 Saturday, March 19, 2011 3:24 PM
I still can't see it was in FF now in IE in post 79 I do see an outline with a red X in the upper left cornner in IE