I are Uvah of Borg
that's what it feels like
Thursday, March 14, 2019 by Uvah | Discussion: Life, the Universe and Everything
An update on me. Just got back from seeing my cancer doc. Mine is stage 3b adenocarcinoma. Non small cell lung cancer and I'm going to be treated systemically (I think that's what it's called) with Keytruda. My doctor says the markers needed are there, which is a good thing. However being that it is stage 3 it won't go away forever and I'll have to deal with it as is. I'm going to be getting a port installed (good choice of words?) beneath my right shoulder simply because it'll be easier than sticking a needle in my arm every time they need a sample or to inject medication. Hence my reference to Borg because I feel like one. My doctor also wants a CT scan to have a look inside mine head. Why I dunno because I told him there ain't much there, if anything, to see but he insisted. Fortunately my adopted daughter Jessie has taken control over the whole shebang because I doubt I'd be able to follow half of what all those doctors I've seen had to say. Tell you that girl is worth her weight in gold. She is so meticulous and keeps track of every little detail. So this is where I'm at. It remains to be seen how long it all lasts. But I are positive and don't intend to stress it, that will only make things worse. So first a pacemaker then a port. What could come next? Peanut gallery comments welcome.
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Reply #3 Thursday, March 14, 2019 7:09 PM
Sending prayers your way Ross, just follow docs orders, and it sounds like you're in good hands with your adopted daughter! 
Reply #4 Thursday, March 14, 2019 10:10 PM
Glad your daughter is taking care of you, Ross. Who can remember all the doctors say! Always good to have another family member or friend with you. In my prayers.
Reply #5 Friday, March 15, 2019 12:53 AM
Do what the doctor says to to do. Sounds like you have a good doctor. Sounds like you have a wonderful daughter. May God Bless You.
Reply #6 Friday, March 15, 2019 1:47 AM
From the peanut gallery:
You are Uvah of Borg.... next you'll be needing a prosthesis to replace your bargain basement bladder.
Seriously, here's hoping all goes well with your treatment and that it meets with success.
Reply #7 Tuesday, April 2, 2019 11:15 AM
Borg update:
Currently visiting the maintenance department at Borg Central (Chester County Hosp.) for a recurrence of the COPD restricting my breathing. Normally its handled easily at home but not this time. It had nothing to do with the pneumonia that got me here in the first place but with the emphysema associated with the COPD. I've already begun with the Keytruda treatments, having had my first last Thursday. My port was put in a week before the previous Monday. Tomorrow is the fourth and I'm scheduled for a follow up to the first treatment with blood work which will be done here. Next treatment is in two weeks. But what it all boiled down to was my not being able to sleep at night due to the congestion brought on by the COPD and what came with it. Before being taken to my room on Sunday night I had to undergo another CAT scan. That was a scary experience as lying flat on my back did not allow me to breathe at all and I had a panic attack. Yesterday morning an ultrasound was done and a small blood clot was found in the lower part of my left leg. I'm told it was not unexpected as the tumor likely brought that on, so no worries there as I'm being given a blood thinner to deal with it. So this is where I'm at presently. More later as I'm getting another breathing treatment now.
Reply #8 Wednesday, April 3, 2019 2:51 PM
Today:
Another CAT scan. Compared with the one I got on Sunday was worse. The doctors believe the tumor is somehow affecting how my heart is working, that there may be a clot lurking somewhere. Not sure yet though. Going for a third bronchoscopy because some airways are blocked in both lungs and they want a clearer view of what's going on down there. Long term outlook......bleak. If I don't get aggressive with all this they say my only alternative would be a hospice and I ain't going that way. I fully intend to take to the next level and then some because ain't nothing gonna kick my ass that quick. Hell no!
Reply #9 Wednesday, April 3, 2019 8:56 PM
Nah, I wouldn't want to go into a hospice, either. Get the necessary treatment and hopefully it knocks your issues on the head so you can remain liviving independently. 
Reply #14 Thursday, April 4, 2019 11:48 AM
I'm 66 going on 102 it feels like at times. Today though I feel like a bit younger, a third bronchoscopy was canceled because one doctor doesn't believe it to be necessary at this time. Had an EKG yesterday and partial results, partial being relative, there has been no intrusion into my heart from the tumor and my heart is working as it should. That made my day. I've been taken off the antibiotics as no infection has been found. Doctor visits at least three times a day and I'm up on just about everything going on. Was seen yesterday by an occupational therapist who checked my coordination and said flat out, "You don't need me", with a smile. Next will be a physical therapist, breathing tests and whatnot. So I think I'm gonna be here for a while still. One good thing...three hots and a cot. Lol
*and a few good lookin' nurses* 
Reply #16 Friday, April 5, 2019 12:03 PM
Am praying for you. And they told us these were the golden years.
Reply #18 Monday, April 8, 2019 1:54 AM
More good times? For mine, he's has more than enough good times!
He needs to get down to some serious work....
Thar be skins in tha wantin' Aaaarghhhhh! 
Reply #19 Monday, April 8, 2019 2:55 AM
any port in a storm... 
sounds like you're weathering the storm well... lots of good people taking good care of you...
hope the waters are a little calmer for you soon...
(the only thing missing in this post is the pirate speak... 
and I'll leave that to Capt Starkers... ) 
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Reply #1 Thursday, March 14, 2019 4:42 PM
Just do what you must Ross, and get as healthy as possible.